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Books, Treats, and Bingo: A Day with my Mother with MSA
By Julianna Eley “Do you want to give Nugget a treat?” “No.” These days, no usually means yes but I waited for her to clarify. “YES! Yes. Yes.” I tucked the treat into my mother’s right hand. Her grip...
View ArticleThe Lessons MSA has Taught Me
By Kathleen Shada First, I want to gratefully acknowledge my privilege. Thanks to my parents and family, I‘ve never wanted for anything. Also, I’ve been very lucky to have caring friends who have...
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MSA Instruction Manual
By Amy Davis When my husband was diagnosed with MSA-P in 2017 and after the shock of what we would be dealing with, I immediately wished for an MSA instruction manual. Through all the numerous doctors’...
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From Parkinson’s to MSA: My Path of Resilience and Faith
Hello, my name is Teresa Scruggs-Dyer, and I want to share some of my experiences with Multiple System Atrophy (MSA). There are 2 types of Multiple System Atrophy, MSA-P (parkinsonian) and MSA-C...
View ArticleYou Walk Away? | A Poem from an MSA Patient
By Teresa Baker I write a great deal of poetry in order to express feelings, ideas, and opinions which come from someplace deep inside which cannot be easily explained; but I also think and express...
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Learning to Navigate Life Changes
By Wendy McCullough April 27th, 2023 marked 25 years since my husband, Jason, and I said, “I do.” We vowed to love and care for each other through all of life’s changes, and yet, when you are in your...
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The Loving Sacrifice of Caregiving
By Deborah Park Hello, my name is Deborah and I’m a 25-year-old daughter whose mother lost her fight to Multiple System Atrophy on September 11, 2021. My story of caregiving began in 2018 when my mom...
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Saying Yes to Opportunities
By Christine Kozikas My story started in 2015 when I fell at the counter of the news agency I worked in, and a co-worker humiliated me by sharing security camera footage with every sales rep that came...
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Christmas and MSA
By Tom Tait Is this the last Christmas? How do you get through Christmas with your loved one who was just diagnosed with possible MSA. The question always on your mind is, “Will this be the last one?”...
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Navigating Emergency Room Visits and Hospital Stays
By Cathy Chapman During the course of my journey with MSA, (I was diagnosed in 2012), going to the Emergency Room and having to stay overnight in the hospital was something I have had to experience...
View ArticleYou Can Go Home Again — with Preparation
By Alan J. Smally MSA Coalition Board of Directors Patient Representative Thomas Wolfe wrote “You Can’t Go Home Again,” but I thought maybe I could for Christmas. Although I was born up north, I had my...
View ArticleThe Not So Little Things
By Jimmy Burt and Kathleen Romania Can you feel joy and sadness at the same time? It seems like, nowadays, every Christmas season I experience this duality of emotions. I think my wife and her family...
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